Tuesday, July 18, 2017

Campus Speech Codes Target the Neurodiverse

There is a fantastic piece by Geoffrey Miller on The Neurodiversity Case for Free Speech in which he makes the argument that Isaac Newton wouldn't have been welcome on today's university campuses.
Ever since the Middle Ages, universities have nurtured people with unusual brains and minds. Historically, academia was a haven for neurodiversity of all sorts. Eccentrics have been hanging out in Cambridge since 1209 and in Harvard since 1636. For centuries, these eccentricity-havens have been our time-traveling bridges from the ancient history of Western civilization to the far future of science, technology, and moral progress. Now thousands of our havens are under threat, and that’s sad and wrong, and we need to fix it.
Now universities actively run off such people. They'll revise your evaluation until they get the low score they're looking for and even claim you weren't "properly hired." Anything to make sure everyone is the same, non-threatening in any way, and completely institutionalized.

Friday, June 23, 2017

On Anxiety

If you are anywhere at all on the autism spectrum, you have anxiety. It seems to come with the territory. It's easy to find things about which to be anxious, but in truth the feeling seems to just be there, as background noise, never ceasing.

At the same time, there are plenty of things that give us anxiety. Facing new social situations is an obvious one. While we may be standing off to the side, sitting there quietly, seeming to only be listening, perhaps appearing aloof or even arrogant, the fact of the matter is that the situation makes us anxious, and it may take us a while to get used enough to the situation to come out of our shells. That probably won't happen at the end of a party, but it might happen at the end of a week-long academic conference.

One thing that causes us anxiety is not working on our project, whatever that project may be. Most of the time, we are our work, and that means when we are working on a project, we almost don't know what to do with ourselves when we are not working on it. When I am working on a project--whether it's a novel, a poem, a play, a paper, a nonfiction book, or some other project--I am always thinking about that project. I am anxious when I am not working on my project. When I am working on it, I am anxious to finish it. It drives me, but it also drives me a little crazy. I seem to be absent-minded, but I'm always thinking about my project. It never ends, until the project is over.

And then I start on the next project, and the cycle of anxiety starts all over again.

Even now, as I am writing this, Daniel is full of anxiety because he has a project he wants to do, but he can't get his younger brother to cooperate with him (or, more honestly, obey him and do everything he says--something that makes Dylan's supreme independence a perfect foil for Daniel). Because he is anxious and frustrated, he yelled at his mom, which caused me to have to stop and make him apologize to her.

These frustrations/anxieties are part of our daily experience in dealing with other people and the the world in general that constantly imposes on us and prevents us from working on our projects, which is really all we want to do. Daniel is going to have to learn that you can do more with honey than vinegar, or he's going to just stop trying to involve anyone and do work that doesn't involve anyone else to get it one.

You know, like writing.

So there are certainly many things that make us feel anxious. The fact that we identify with our work, and not working on our work makes us feel anxious to work is part of it, but it's hardly all. Sometimes, you just feel anxious. And it may not be caused by anything in particular. The fact is that most of the time, we simply feel anxious because we feel anxious. We can look for causes, but how often will that be simple justification of the feelings? The fact of the matter is, anxiety is co-morbid with autism. Sometimes it just is. It is the background noise of the world when you are autistic.

Wednesday, May 3, 2017

More Support for the Intense World Theory; Or, Why We Hear Better Than You

We may start looking at auditory signs of autism based on two recent discoveries. One is that autistic people hear more sounds than do neurotypical people. The other is that the reason for this is that inhibitory pathways in the brain are weaker in autistic people.

Readers of this blog will not find the latter to be the least bit surprising. Weak inhibitory neurons would of course create more intense experiences of sensory input since inhibitory neurons dampen out information. They quiet things down, so to speak.

With weak inhibitory neurons, the excitatory neurons are necessarily going to dominate. This creates positive feedback, which makes for a more intense experience of one's senses.

The first article also contributes to the increasing number of sources touting the positive aspects of autism. They point out that autistic people often do better than neurotypical people on visual and/or auditory tasks, spotting more continuity errors in videos and being more likely to have perfect pitch. I have little doubt that my high-level skills in proofreading have everything to do with my autism. Taking in an processing more information has its advantages.

Unfortunately, that "more information" doesn't seem to include human faces.

Tuesday, May 2, 2017

On the Double-Mindedness Developed Among the Different

In The Souls of Black Folk, W.E.B. Du Bois says that blacks have a sort of doubleness in them not found among whites. Blacks cannot just "be themselves," but must always think about how they are being perceived by whites. This creates a sense that you are always of two minds: that you are not only thinking and doing, but that you are thinking about how others perceive you, and adjust accordingly. Whites never have to deal with this. Being the majority and having the majority power, they can just be themselves without worry about how anybody is thinking about them.

Du Bois would probably not be surprised if he learned that other minorities were put in similar situations in the U.S., but it probably didn't occur to him that there were people out there with different kinds of minds, and that they too would develop such a doubleness.

I know all about this double-mindedness, because I experience it constantly. I not only have to think about what I'm going to say or do, but I have to think about how others might take it. I can either just say or do whatever I want as I want and hope that I don't do something that will set people off, or I can always consciously think about everything I say or do before I say or do it, testing against what I expect the expectations are (and hoping I'm getting those right). If it takes me a moment to respond to something, it's because I'm going through all this nonsense to make sure I don't say or do something wrong.

Now, you might expect this to take place in a 45-year-old man, but you wouldn't expect it to take place just quite yet in a 7-year-old boy. However, Daniel has lately been saying some things that shows he--on some level, at least--does understand that he has to engage in this double-mindedness.

While we all behave differently in different environments--school, home, church, work, etc.--rarely do we think these things through. However, when I asked Daniel one day if he behaved at school the way he did at home, he told me that because he has to keep it together at school, he likes to "go crazy" at home. That is, this is something he's actually thought through. Other children may do the same thing, more or less, but how many would articulate it as such?

More negatively, Daniel has complained that his "brain is rotten." He understands that the way his brain works is not the same as everyone else. While we would certainly prefer him to think of his brain as merely different and not as "rotten," we get what he, as a 7-year-old, is trying to articulate. When he most recently complained about this, we pointed out to him that I have autism, just like him, and (because the kids happened to be watching Ghostbusters II at the time) that Dan Akyroid has autism. We suggested that someone with as much education as I have and someone who is a successful and funny actor couldn't really have rotten brains, but that rather our brains were just different.

Unfortunately there is the too deeply human belief that "different is wrong," and Daniel will have to learn otherwise as he matures. Because I hardly thought of my brain as rotten (everyone always said how smart I was), I thought that everyone else, being different from me, were wrong. The way that they thought was stupid, as far as I was concerned. Now, knowing what I know about myself, I realize that it is my way which is divergent and different--but that doesn't mean rotten and wrong.

Daniel also insists that nobody likes him, that he has no friends. When we ask his teacher, she keeps insisting that he plays with the other kids all the time, meaning that there is some sort of disconnect between what others see happening and what Daniel seems to perceive. I think it's pretty clear that Daniel understands that the other kids all think he's "weird," which he interprets as them not liking him. It probably doesn't help that Daniel directs play more often than not, and can get upset when people aren't "playing right." Most kids aren't going to like that, and Daniel, not understanding why they wouldn't want to be his pawn pieces, interprets that as them not liking him or wanting to play with him. So there is likely some combination of awareness and ignorance at play, though both are driving Daniel to develop this dual awareness.

It's probably a bit much to expect neurotypical people to allow us to just be ourselves. After all, viewing neurological differences as positive is a recent development, and it's going to take a while to catch on. Maybe there will be a day when people with different neural structures or different cultural backgrounds can just be themselves without having to think about how they will be perceived by the power majority. We don't know what will be gained, or possibly even lost, if and when that happens, but it would be interesting to at least find out. Daniel's double-mindedness is already being developed; perhaps his own children won't have to go through that.

Monday, February 6, 2017

Dallas Symphony Orchestra's Sensory-Friendly Performance

Last night my entire family attended a special concert for families with autistic children put on by the Dallas Symphony Orchestra. This sensory-friendly performance was the second annual performance, and it is the idea of the conductor himself, Jaap van Zweden. The linked news story is from last year, when the first one was put on. We only learned about it this year.

As it turns out, conductor Jaap van Zweden has an autistic son. It is actually not that uncommon for creative types such as Zweden (or myself---I am a poet, fiction writer, and playwright) to have children on the spectrum. Silicon Valley is famously full of autistic children (and their mildly autistic parents). It should perhaps not be surprising that a combination of strong pattern-detection, strong visual memory, strong long-term memory, weak censor, and weak tendency to follow the crowd (or even be aware of the crowd) is associated with artistic creativity.

Now, I wish I could report that the symphony had the same effect on Daniel as did Balloonacy, but perhaps because there is so much music in our house and perhaps because Melina is taking piano lessons, so he has heard this kind of music before, he didn't seem all that into it. Of course, it may have been just that he was in a new place and was therefore uncomfortable. He mostly slumped in his chair, but then he also sat in my lap for a bit, during which time he seemed to be paying more attention to the orchestra.

Of course, his lack of complete focus may have been because he also had something on his mind about which he was primarily concerned, and therefore was barely aware that there was interesting music taking place. The day before, he had bought a solar system to hang up in his room, and I told him we were going to put it together when we got home from the symphony. And that, of course, is precisely what we did the minute we walked through the door. Because when Daniel prioritizes, he prioritizes hard.

On the other hand, he did say he recognized one of the pieces. J. Strauss, Jr's. On the Beautiful Blue Danube Waltz, Op. 314. It's sometimes hard to tell when he's really paying attention to something. Things in the periphery are often what people one the spectrum are really paying attention to. Maybe he'll be more into it next year.

Regular readers of my blog know that I have written before about the sensory-friendly performances at the Dallas Children's Theater, particularly Balloonacy, which was turned into a video. I am happy that these sensory-friendly performances are starting to spring up in Dallas. They allow autistic children to get exposure to culture, and they allow families such as ours to be able to go out to places without our worrying about how Daniel will behave or react.